Our little boy Austin had spinal surgery in 2009 to correct a tethered cord. During that same time period, they diagnosed him with a Chiari Malformation. He is asymptomatic at this point, so the only treatment necessary is a brain MRI every year and a half, along with an appointment to see his neurosurgeon.
For me, this video highlights the urgency of finding a cure or alternative treatment before Austin develops symptoms.
There is a Conquer Chiari walk on September 22 of this year at locations around the country. If you live near Louisville, think about joining us.
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